Legacy and Supporter Relationships Manager
Salary £ 35,200
Hybrid - 2 days a week in our Liverpool office
Vacancy listed 14/07/2026
Application deadline 17/08/2026
Details
About Huntington's Disease Association
Huntington's disease has a profound and lasting impact on families, often across generations. Our supporters frequently have a deep, personal connection to the cause and many stay with us for years - as fundraisers, donors and advocates. We are a small, passionate fundraising team working to grow the income that funds vital services and support for everyone affected by HD.

About the Team
You will join a small, collaborative fundraising team comprising a Trusts and Foundations Manager, a Community Fundraising Coordinator, a National Activity Events Coordinator and a Fundraising Administrator. The Head of Fundraising leads on corporate partnerships, major donors and fundraising strategy. Each team member works with a degree of autonomy whilst contributing to shared income goals and a collective approach to supporter care.

Role Purpose
To steward and grow relationships with our individual supporters across every stage of their journey with HDA - ensuring that however someone first connects with us, they feel known, valued and inspired to stay with us for life. This role leads on legacy and in memory fundraising, two areas of significant strategic importance to us, whilst sustaining and developing our wider base of individual donors through appeals, regular giving and digital communications. Working closely with colleagues across fundraising and communications, you will help ensure that every supporter feels genuinely connected to our cause and to the community of people whose lives are shaped by Huntington's disease.

Key Responsibilities

Legacy Fundraising
To develop and deliver a programme of legacy fundraising that builds long-term income for HDA. This includes:

  • Monitoring Smee & Ford for new legacy notifications and managing all correspondence with solicitors and executors across our active estates in a professional and timely manner
  • Recording and maintaining accurate legacy records on Donorfy and the First Class portal, and filing all relevant documentation 
  • Notifying the CEO and relevant trustees of new notifications, estate accounts and other significant updates
  • Adding legacy gifts to Donorfy and ensuring solicitors and executors receive appropriate acknowledgement for their role in administering estates
  • Developing and delivering a legacy marketing programme that builds awareness of gifts in wills, cultivates prospective pledgers and stewards existing pledgers with meaningful, personalised communication
  • Monitoring the Free Wills Network for new referrals and pledges, maintaining accurate records on Donorfy and ensuring pledgers receive appropriate acknowledgement and ongoing stewardship
  • Identifying opportunities to convert engaged long-term supporters into legacy pledgers, using supporter data and insight to inform approach

In Memory Giving
To steward and develop our in memory giving programme, recognising the particular sensitivity required when working with bereaved families and the long-term potential of these relationships. This includes:

  • Building sustained and sensitive relationships with next of kin beyond the initial acknowledgement, deepening their connection with our charity over time
  • Developing in memory giving as a growing income stream, identifying opportunities to improve the supporter experience and increase income
  • Working with the Communnications team to ensure in memory giving content across digital channels and the website is appropriate, up to date and compassionately presented

Individual Giving - Stewardship and Development
To sustain and develop our individual giving programme, ensuring donors at every stage of their journey feel valued and engaged. This includes:

  • Stewarding and retaining our existing base of regular and single donors, ensuring they receive warm, timely and relevant communication throughout the year
  • Monitoring retention indicators across the individual giving portfolio, identifying and responding proactively to any signs of lapsing
  • Using supporter data and insight (including findings from our ongoing supporter research) to improve segmentation, personalisation and the overall donor experience
  • Identifying opportunities for supporter upgrade and conversion, recognising that many of our supporters move through multiple giving relationships with us over the course of their lives

Appeals and Mailings
To lead on the planning and delivery of our fundraising appeals and impact communications. This includes:

  • Project managing a small number of fundraising appeals across print and digital channels, and our impact report mailings, working with the Communications team on creative development, our data manger on segmentation and coordination of the mailing house
  • Writing compelling fundraising copy that reflects the deeply personal nature of our cause and the long-term relationships our supporters have with our charity.

Digital Donor journeys
To ensure our digital supporter communications are active, personalised and of the same quality as our print-led activity. This includes:

  • Working closely with the Communications team on digital donor journeys, including onboarding and email stewardship, providing clear fundraising briefs and sign-off on fundraising content
  • Ensuring individual giving is actively and consistently promoted digitally, identifying opportunities in collaboration with Communications across email and social media channels
  • Using supporter segmentation to ensure digital communications are relevant and personalised to different donor groups and stages of the supporter journey

Cross-team Collaboration
  • Working collaboratively with the Community Fundraising and National Activity Events Coordinators to ensure that supporters who both fundraise and give individually receive joined-up, consistent stewardship, with clear mutual respect for each colleague's supporter relationships
  • Contributing positively to a team culture of shared ambition, open communication and collective problem-solving

Reporting and Income Accountability
  • Monitoring and reporting regularly on individual giving income performance, contributing to the fundraising team's collective accountability for income goals
  • Maintaining accurate and up to date records across all individual giving activity in Donorfy, ensuring data integrity and GDPR compliance

Person Specification

Essential
  • Demonstrable experience in individual giving fundraising, with experience across at least two of the following areas: legacy marketing, in memory giving, fundraising appeals, regular giving
  • Strong project management skills, with experience of taking fundraising or communications projects from brief through to delivery
  • Excellent written communication skills with the ability to write warmly, compellingly and sensitively for a fundraising audience
  • Confident and accurate working with a CRM system, including maintaining data quality, running reports and using data to inform stewardship decisions
  • Digitally confident and able to work effectively with an email platform, contribute to digital donor journeys and understand the principles of digital stewardship
  • Highly organised and self-sufficient, with the ability to manage a varied and sometimes emotionally demanding portfolio of work in a small team environment
  • A clear understanding of and commitment to income accountability - comfortable contributing to and reporting against individual giving income performance 
  • A genuine commitment to relationship-led fundraising and an understanding of the particular value of long-term donor stewardship in a cause with a close-knit, personally connected community

Desirable
  • Experience of legacy fundraising specifically, including legacy marketing and/or the administration of estates going through probate
  • Experience of in memory fundraising and working sensitively with bereaved families
  • Experience of working in a small charity or with a cause community where supporters have a deep and personal connection to the work
  • Familiarity with Donorfy or a comparable CRM system
  • Familiarity with Mailchimp or a comparable email platform

Personal Qualities
  • Warm, empathetic and emotionally intelligent. Able to communicate with authenticity and sensitivity with supporters who have a deeply personal connection to Huntington's disease
  • Resilient and pragmatic - comfortable with the breadth of a small team role and able to work independently without significant infrastructure around them
  • Collaborative and collegial - a genuine team player who builds trust across the organisation and works openly across teams
  • Proactive and curious - interested in understanding supporters more deeply and motivated by finding ways to improve their experience of Huntington’s Disease Association

Application
Please click on ‘apply’ to begin your application, and provide both a CV and cover letter outlining why you are applying for the role and how you meet the requirements of the person specification. Further information about the role and the Huntington's Disease Association can be found in the job vacancy pack

Closing date for applications is Monday 17 August 2026, 5pm.

First round interviews will be held online on Thursday 3 September 2026. Second round interviews will be held in-person in Liverpool on Friday 11 September 2026

Benefits

· Hybrid working to support work life balance - 2 days a week in our Liverpool office
· 25 days annual leave plus public holidays (pro rata for part-time staff)
· 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
· A pension scheme with 3% employer contribution
· Medicash scheme
· Travel-to-work scheme
· Flexible working approach
· Family forward policies
· Supportive and positive working environment
· Fantastic learning and development opportunities

Attached documents
Title File
Job vacancy pack - Legacy and Supporter Relationships Manager Job_vacancy_pack_-_Legacy_and_Supporter_Relationships_Manager.pdf
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