We are seeking a highly motivated Events and Engagement Officer to lead our national programme of events and activities for children, young people and young adults from families affected by Huntington's disease. Through events, activities and involvement opportunities we help reduce isolation, build connections and ensure the voices of young people and young adults within this community are heard. 

As an Events and Engagement Officer, your main responsibilities will include planning, organising and delivering our national programme of events and activities, alongside leading ‘Huntington's Disease Youth Voice’, our group which enables the involvement of children and young people in shaping our services and wider work. You will also support the monitoring and evaluation of services, helping to ensure we understand and demonstrate the impact of our work. 

This role is 35 hours per week and home-based, with essential regular travel across England and Wales, including some evening, weekend and overnight work. The successful candidate must hold a full UK driving licence and have access to a car. 

We are seeking a compassionate and organised individual with significant experience of planning and delivering events for children, young people and/or young adults. The ideal candidate will also have experience of engaging young people in shaping services, activities or projects. If you are enthusiastic, self-motivated and passionate about improving the lives of people affected by Huntington's disease, this is an excellent opportunity to contribute your skills and experience within a respected national charity. 

Join us on this meaningful journey to help make every day with Huntington's disease the best day possible and ensure that the voices of people affected by Huntington's disease remain at the heart of everything we do. Together, we can make a difference. 

Learn more about the role in the job pack included. 
 
We are looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow Safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity. 

Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website. 

Click on 'apply' to begin your application. To ensure your consideration, please upload both a CV and cover letter. Your cover letter should include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack. 

Applications submitted without both a CV and cover letter will not be considered. 

Closing date for applications is Tuesday 24 November 2026. 

Interviews will likely take place in Liverpool on Wednesday 2 December, Friday 4 December, or Friday 11 December or Monday 30 November.